Cll and covid-19 asco: This was a recent post... - CLL Support

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Cll and covid-19 asco

desti profile image
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This was a recent post with regards to Cll and covid at the ASCO meeting. Interesting observations in the beginning of the blog post in relation to treatment with Ibrutinib for CLL and positive consequences for the patient.

This is the

ascopost.com/podcasts/does-...

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desti
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bennevisplace profile image
bennevisplace

Interesting case report, especially the patient initially on lower dose. Ibrutinib seems to have played a part in recovery.

It will be quite a few months before the clinical trials yield conclusive evidence.

Nevertheless, I understand that doctors in the USA are permitted to give Ibrutinib to severely ill Covid patients, off-label. Does anyone know whether that's the case in the UK and elsewhere?

Sallybroadhurst profile image
Sallybroadhurst in reply tobennevisplace

So good to hear this! I am pretty sure I have the Rare (cause you know that happens to us callers) invasion of Covid in my intestines, 16 days now, started like a volcano in my upper GI. Last Friday at day 14 my oncologist told me to stop Imbruvica for 5 days. I like to follow instructions though I think I will call her tomorrow and just have 4 days off instead of 5. Being off the Imbruvica has not lessened my symptoms. Heck of a way to lose the excess weight.

bennevisplace profile image
bennevisplace in reply toSallybroadhurst

Hope your symptoms resolve soon. You seem to be a candidate for the CV antigen test?

AdrianUK profile image
AdrianUK in reply tobennevisplace

Not in the UK as far as I know. Doctors here are encouraged instead of using drugs that “might work” to recruit patients into a huge randomised clinical controlled trial that tests medicines against each other properly to see if they work. Almost 10,000 patients enrolled so far and definitive results expected in the coming weeks and months recoverytrial.net/for-site-...

Cindi73 profile image
Cindi73

I've read somewhere that University of Pennsylvania has been trying this with patients with covid 19. My cll doctor is at this hospital. USA

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