Yesterday I made Ricther's group and people who have the same disease do not stop entering. I am keeping all cases in archives so that they are registered for medical studies and help other patients.
I don't have Richters, but I do have some of the markers for it. ( CD79b, Notch1, 4-39 ). I would really like to know what to watch out for. For example, can RT occur when blood counts are normal?
That is why they are always detected in very advanced states. I was detected by chance. I had a breast cancer and found the Ricther when analyzing the glands.
Doctors watch for an elevated LDH count and / or a node that appears suddenly or enlarges suddenly. Not little pop up nodes, but a significant one showing sudden growth.
Priss, I've removed the photo because it looked as though it had the names of individuals on it and they may not have given their consent. If they have please feel free to repost it but we do need to be careful about sharing information between platforms.
Not always, it's highly complex and coincidence and causality are not the same thing. Some people will always be low risk for Richter's and others high risk no matter how long they have CLL but we are only just starting to understand some of these things.
What I don't understand is how the doctors didn't realize that I was developing a Ricther. I was in a clinical trial and I had complete analyzes every month and scan exams.
I have two breast cancers on both breasts. The same day they tell me that I am in complete remission of the LLC I find breast tumors. I was on a clinical trial with Ibrutinib and they gave me birth control to see how they acted in my body. I think the answer to the clinical trial was the two breast tumors.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.