Richter’s treatment started : Yesterday I began... - CLL Support

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Richter’s treatment started

SarasotaPaul profile image
11 Replies

Yesterday I began my Richter’s treatment journey: Nivolumab (Opdivo) infusion at Moffitt twice a month for two months with daily 420mg Ibrutinib. The infusion was easy and lasted in total for less than an hour. By the end of day I felt a little queasy, but feel nearly normal today.

I’m relieved to have the approvals for the treatments nearby in Tampa and supervised by my MDA doctors. My experience at Moffitt has been wonderful and lucky to be combining their expertise with MD Anderson.

Off to a strong start!

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SarasotaPaul profile image
SarasotaPaul
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11 Replies
Mystic75 profile image
Mystic75

So glad it is working out, Paul! All the best to you for a very successful treatment!!

Poodle2 profile image
Poodle2

Wishing you all the best!!!

cllady01 profile image
cllady01Former Volunteer

Glad the beginning has begun and you are feeling okay. Wishing you the best as the treatment continues. Thanks for the update.

JigFettler profile image
JigFettlerVolunteer

Good luck! I hope the journey is smooth for you. Jig

Sojomama13 profile image
Sojomama13

Hi Paul,

Sounds like you are in good hands. Wishing you all the best.

Sandy

Smakwater profile image
Smakwater

I did not realize that opdivo was used to treat richter's until I saw your post and researched it.

It appears that opdivo aka nivolumab is being tried in combination other drugs like ibrutinib, duvelisib, and copanlisib.

clinicaltrials.gov/ct2/show...

clinicaltrials.gov/ct2/show...

cancernetwork.com/leukemia-...

Look forward to seeing a good outcome for you.

JM

SarasotaPaul profile image
SarasotaPaul in reply to Smakwater

It has similar outcome as RChop with Ibrutinib, but less toxic and fewer side effects. Since I’m working, that was appealing. My enlarged lymph nodes are already diminished, so exciting to see it working.

Richterswife profile image
Richterswife

Best of luck with your treatment - great start!

Maree

81ue profile image
81ue

I wish you success in this treatment program

MFThorses profile image
MFThorses

Glad you did well Paul looking forward to a great outcome.

6357axbz profile image
6357axbz

Paul, don’t know how I missed your post. I too am going to MD Anderson and recently visited Moffitt because they are local and would be more convenient for future treatments. I was disappointed with the MO I was assigned. Who are your oncologists at MDA and Moffitt?

Thanks

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