Richter’s treatment started

[SarasotaPaul]

Yesterday I began my Richter’s treatment journey: Nivolumab (Opdivo) infusion at Moffitt twice a month for two months with daily 420mg Ibrutinib. The infusion was easy and lasted in total for less than an hour. By the end of day I felt a little queasy, but feel nearly normal today.

I’m relieved to have the approvals for the treatments nearby in Tampa and supervised by my MDA doctors. My experience at Moffitt has been wonderful and lucky to be combining their expertise with MD Anderson.

Off to a strong start!

[Mystic75]

So glad it is working out, Paul! All the best to you for a very successful treatment!!

[Poodle2]

Wishing you all the best!!!

[cllady01 Former Volunteer]

Glad the beginning has begun and you are feeling okay. Wishing you the best as the treatment continues. Thanks for the update.

[JigFettler Volunteer]

Good luck! I hope the journey is smooth for you. Jig

[Sojomama13]

Hi Paul,

Sounds like you are in good hands. Wishing you all the best.

Sandy

[Smakwater]

I did not realize that opdivo was used to treat richter's until I saw your post and researched it.

It appears that opdivo aka nivolumab is being tried in combination other drugs like ibrutinib, duvelisib, and copanlisib.

clinicaltrials.gov/ct2/show...

clinicaltrials.gov/ct2/show...

cancernetwork.com/leukemia-...

Look forward to seeing a good outcome for you.

JM

[SarasotaPaul in reply to Smakwater]

It has similar outcome as RChop with Ibrutinib, but less toxic and fewer side effects. Since I’m working, that was appealing. My enlarged lymph nodes are already diminished, so exciting to see it working.

[Richterswife]

Best of luck with your treatment - great start!

Maree

[81ue]

I wish you success in this treatment program

[MFThorses]

Glad you did well Paul looking forward to a great outcome.

[6357axbz]

Paul, don’t know how I missed your post. I too am going to MD Anderson and recently visited Moffitt because they are local and would be more convenient for future treatments. I was disappointed with the MO I was assigned. Who are your oncologists at MDA and Moffitt?

Thanks