Update #4 “ Treatment Begins. “

[Coolerjoe]

Hello All

Sorry a few days late. I had my 3rd infusion on Friday. Got to Rutgers around 7:00 A.M.

Labs, first the wait for results. No issues so let’s get going. Started infusion premeds 💉around 10:00 am. Started 🧪infusion around 11:00 am. Striated step up again. Took it much faster this time was done by 3:30PM.

So it looks like outpatient infusions from now on. Having a little problem with a tooth this week getting that looked at on Friday. Mouth is sore

Do not want an infection. 😳🦠

Next treatment is on the 14th of June.

So far i feel good a bit more energy than in the last few weeks. I am sure that was from the hospital stays.

Not much more to report at the moment.

Everyone have a great week.

[Coolerjoe]

Sorry next treatment is May 14th.

[Hidden]

look again. those are containers of sterile wipes. You buy similiar containers in supermarket.

[ygtgo]

... ' No issues ' ....' Not much more to report at the moment. '

No news is good news ...

I hope that there is no news on the infection front.

ygtgo

[cajunjeff]

I got the reference Scott.

[Coolerjoe]

Lol great call.

[mrsjsmith]

Scott,

I thought of you reading the London Metro newspaper today ! Picture from Game of Thrones with a Starbucks cup in full view ! Ooops 🤭

Colette x

[alpek]

Glad to hear things are going well. How are your blood numbers after several weeks on Ibrutinib/3 infusions?

[Coolerjoe in reply to alpek]

I am going to scan and upload my labs so people can see the progress. Later today when i get home.

[Brandy16]

Following your journey closely. My husband started a trial today for Ibrutinib/Obenituzimab. Reacted first thing to the Obenituzimab with convulsions. More benedryl and some demerol. Hoping for the best and minimal reactions. Glad you are doing better and seem to be through the reactions.

[Coolerjoe in reply to Brandy16]

Finished up my Obinutuzumab infusions a month ago. Now just another year of Imbrutinib and Venetoclax and hopefully will be in remission.

[Brandy16 in reply to Coolerjoe]

Best of luck. Our Arm of the trial does not include Venetoclax. We were hoping for that but we will see where this journey takes us. I hope your remission is soon!

[Justasheet1]

Brandy,

Same thing happened to me. After infusion number one, it was eventless.

Jeff

[Brandy16 in reply to Justasheet1]

Thanks for sharing. We weren’t really expecting that so it took us off guard. More Benedryl and some Demerol and he was able to finish. Hoping for a better Day 2 infusion.

[Justasheet1 in reply to Brandy16]

Brandy,

Here’s my experience with Gazvya. I posted it previously.

Jeff

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