New here. I was diagnosed with CLL a little over a month ago. This a little scary. Just now found this group. Thank you for being here. It helps knowing I am not alone.
Hello: New here. I was diagnosed with CLL a... - CLL Support
Hello
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Hi Spartan. And welcome! It is scary - especially at first. But you will find lots of support and good information here. Feel free to ask any questions. Bad as the diagnosis is, there are actually many new treatments available and more coming. What stage are you? "Watch & wait?"
best,
kim
Welcome to a very special community happy you have found your way here. You will never be alone. We are a very caring, loving, supportive and have many intelligent people who are able to answer almost all questions you might have and if not will tell you where you will find answers. Just remember to be your own advocate, work on a positive attitude and eat a healthy diet and you will be on your way! All the very best and please stay in touch!!! 😍☘️💕🙏
You will be fine. This is a marathon Not a sprint. Take a deep breath and study up on your new journey. We are all in it together.
Welcome Spartan244. may your watch and wait be forever! Great Forum, lots of wisdom and support here. I do not know which country you come from but if UK join the CLLSA website as well, lots of info, helpline, access to conferences and expert views etc. There are other great societies in other countries as well. knowledge is power!
UK Sparky
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Good advice above. My addition would be to stay away from Dr. Google. There is a lot of accurate information here. cllsociety.org is also a good place to find reliable information, as well as a list of links to other good sites. Don't try to learn everything at once, and ask questions as they come up. You will have time to get familiar with CLL in general, and your specific presentation.
Welcome to the club. ditto from everything said above. The information posts that have been referred to are on the right of the page under pinned post. they are a great starter kit on your knowledge journey. stay away from dr Google - most of that data is way out of date and things have improved exponentially since much of it was written.
We are here for you 24/7 so if you have questions, just ask away.
Welcome to our group! You will find an abundance of information and encouragement here. Stay positive and here’s hoping you are one of the lucky ones who never need treatment.
BeckyL USA
Hi Spartan244, I was diagnosed last September, it comes as a real shock if it's an incidental finding. My blood results have hardly changed since last August, so I get a telephone consultation in September and an appointment in a year's time. Watch and wait brings its own unique challenges, but it gives you time to learn about this condition and prepare yourself mentally and physically. This site is amazing, the support you will get here is second to none. I would also recommend patient power, where there are lots of short videos with cll specialists answering patient questions. Good luck to you 🍀🍀