CLL SPECIALIST IN NYC - MANHATTAN?: Hello... - CLL Support

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CLL SPECIALIST IN NYC - MANHATTAN?

Emma_9 profile image

Hello everyone!

I'm still on W+W after being diagnosed w/CLL in 2016. My current hematologist has not been helping me at all---with fatigue, all day hot clammy sweats, depression, anxiety, sleep disorders. At my wits end.

Would it be possible for anyone here to share a recommendation to a CLL Specialist in NYC?!

My primary care phys is clueless, and only referred me to another hematologist w/limited knowledge of CLL.

All advice very much appreciated!

Best,

Emma

7 Replies

Dr. Richard Furman or Dr. Nichole Lamanna. Both are very well known in the CLL world.

Sloane Kettering may be a good option.

I use Dr Mato he’s in Manhattan. a prior post yesterday mentioned Dr Mato is having a free Question answer in early December at a Double Tree hotel.

Thanks for the suggestions, everyone! I did try Dr. Furman a few months ago, and unfortunately, he doesn't accept my insurance. Will let you folks know how the other options turn out! Thx again!

Superdad3 profile image
Superdad3 in reply to Emma_9

Dr Allan is also at Weill Cornell, not sure if that still presents and insurance issue with you, most patients are referred to him when inquiring abut Dr. Furman. They collaborate and might be another option for you.

lankisterguy profile image
lankisterguyVolunteer

I don't know if you are able and interested but we have a CLL Society Patient Support Group meeting next Sunday with Dr. Lamanna as guest speaker.

CLL PATIENT AND CAREGIVER SUPPORT GROUP

New York City CLL Patient Support Group

The CLL Society invites you to join a

CLL patient and caregiver support group

sponsored by the CLL Society Support & Education Network.

Date:Sunday October 14, 2018

Time:3:00 pm - 5:00 pm

Location:Manhattan SW corner 70th St. & York Ave

2nd Floor

Myra Mahon Patient Resource Center

Address:1305 York Ave

New York, NY 10021

This month we are very excited and pleased to welcome CLL Specialist Dr. Nicole Lamanna of Columbia Presbyterian Hospital in New York City. She’ll be joining us for an informal discussion on “Cutting-edge novel therapies in the treatment of CLL.”

Space is limited. RSVP is strongly recommended.

RSVP EMAIL TO: cllsociety.nyc.group@gmail.com

Please include your name and number of attendees

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And an upcoming LLS meeting with Dr. Mato in December

Ask the Doctor – New York, NY

Free Educational Program for Lymphoma Patients, Survivors and Caregivers

Date and Time:

Wednesday, December 12, 2018

Location: DoubleTree by Hilton, Metropolitan - NYC

569 Lexington Avenue New York, NY 10022

Program Overview:

• Lymphoma Overview

• Treatment Options

• Research Updates

• Question and Answer Session

Featuring:

Anthony Mato, MD, MSCE

Hematologic Oncologist

Director, CLL Program

Memorial Sloan Kettering Cancer Center

About the Program:

Ask the Doctor is a national series of two-hour, topic-specific community based-programs that provide an update on lymphoma treatment by a medical doctor with an extensive question and answer session. Learn more and register here.

Date and Time:

Wednesday, December 12, 2018

Networking: 6:00 PM

Program: 6:30 PM -- 8:30 PM

Location:

DoubleTree by Hilton, Metropolitan - NYC

569 Lexington Avenue

New York, NY 10022

Directions

Meal: Dinner will be provided to registered attendees.

Registration Instructions:

This program is offered free-of-charge to lymphoma patients and caregivers, however, pre-registration is required. Please note, the names and phone numbers and/or email address of all attendees is required to complete the registration. You may also register by calling our Helpline at (800) 500-9976 or via e-mail to Mark Spellman, LRF at mspellman@lymphoma.org .

Program Supporters: The program is supported through unrestricted educational grants from: AbbVie, Bayer, Bristol-Myers Squibb, Celgene, Genentech/BioGen, Gilead Sciences, Kyowa Kirin, Pharmacyclics LLC / Janssen Biotech, Inc. and Seattle Genetics

Let us know how you want to receive updates from LRF:

We have recently redesigned our website, lymphoma.org, and it is now easier than ever to customize how you stay current on lymphoma news and LRF programs, events and resources. We encourage you to update your email preferences on our site and indicate your interests. This will help us provide you with the information and resources that are most useful to you.

lymphoma.org

LRF Helpline: 800-500-9976 | helpline@lymphoma.org

Email Preferences | Privacy Policy | Unsubscribe

© 2018 Lymphoma Research Foundation

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-

Please be certain to email cllsociety.nyc.group@gmail.com and include your name and number of attendees for the Oct 14 meeting. The space is filling fast.

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For the Dec 12 - This program is offered free-of-charge to lymphoma patients and caregivers, however, pre-registration is required. Please note, the names and phone numbers and/or email address of all attendees is required to complete the registration. You may also register by calling our Helpline at (800) 500-9976 or via e-mail to Mark Spellman, LRF at mspellman@lymphoma.org

++++++++++

Len

Emma_9 profile image
Emma_9 in reply to lankisterguy

WOW! Thanks for sharing the info on these amazing sessions! Will plan on attending at least one if not both of the CLL seminars.

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