High CBC & Platelet Counts: I just recently did... - CLL Support

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High CBC & Platelet Counts

riccamarsh profile image
4 Replies

I just recently did an analysis of all the blood work that I've had done since 2002 (total of 14 blood tests) and am not sure if I should be concerned at my results. From what I have noticed all of my CBC tests have been at the higher end of the range, as well as my platelet count. I have also noticed that each of my urinalysis tests have had a pattern as well. Is there anyone that can help me determine if this is something I should be concerned about? Please note that I am in America, so my results are based on their metrics and units of measurements.

Most Recent Results as of 1/16/19

WBC: 11.8 RBC: 5.39 HGB: 15.6 HCT 47.8 PLT: 478

Average of 14 tests from 2002-2019

WBC: 9.7 RBC: 5.3 HGB: 15.4 HCT 45.9 PLT: 425.7

Urinalysis

Out of 12 tests all them have had between trace, moderate or large amounts of urine, including up to 3+ Large

All of them have had some bacteria: between rare to 3+

All of them have had squamous cells ranging from 0-2 to 50-100

All of them had trace amounts of mucus from trace up to 2+

I also have a B12 deficiency: My B12 was at 260 in July 2018 and with injections has raised to 360 in Jan 2019.

I also have a D 25 Hydroxy deficincy: My D was at 16 in July 2018 and with 50,000 unit pill 1x weekly, I have raised it to 24 in Jan 2019

I have also had my gall bladder removed about 20 years ago

I have also experienced an un-diagnosed or confirmed reason for irritable bowel disorder for the past 20 or so years that I suffer from every day.

I have also experienced random nerve issues, from nerve pain at the tops of both my feet, tingling in my lips, cheeks, bell palsy, and both carpal & cubital tunnel syndrome in both elbows and wrists. Along with ongoing muscles spasms in my legs and abdomen.

From my research, I am worried about Polycythemia (which runs in my family) as well as Thrombocythemia and Pernicious Anemia... I'm not trying to over think this, but don't feel as though my doctors have taken me seriously over the years, but have not given me a reason as to why my counts are always high.

Any help will be greatly appreciated! Thank you!

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4 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

You've posted to a community supporting those with a common adult blood cancer, which tends to cause LOW blood counts other than the leukaemia cell counts. I take it that you don't have a blood cancer diagnosis, let alone CLL. Sadly, that means we really can't help you, other than to encourage you to see a haematologist for professional advice.

Neil

riccamarsh profile image
riccamarsh in reply toAussieNeil

Thank you so much!! I will look around and see what I can find as well as look into a Hematologist.

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

I went through similar frustrations dealing with doctors who dismissed me. I finally collected all of my records, including doctors’ notes - your guaranteed right under the HIPPA Law - and fought my insurance company until they allowed me to go to a major university center.

It looks like you need a good hematologist, a good urologist, and a doctor who is known as a good diagnostician. Don’t be afraid to dump doctors who ignore your concerns. I learned to dump them really fast if they weren’t focused on my issues.

As Neil said, this group has a different focus than what you need, but I wish you luck in finding the right team. Putting mine together taught me to be an aggressive patient when necessary.

riccamarsh profile image
riccamarsh in reply toMsLockYourPosts

Thank you so much!! I truly appreciate your support :)

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