I was diagnose with cll in August. I have the 13d and was told my prognosis is good. I have no symptoms but have noticed a couple of tiny swollen glands. I'm going to the hematologist and am scared to death. Anyone have that?
Newly diagnosed with CLL. Have a question. - CLL Support
Newly diagnosed with CLL. Have a question.
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Hello Elm!
In truth , I was relieved when they diagnosed me.
Finally a diagnosis to my swollen neck.
Yes I was scared and still am scared 😟 but try not to think about it.
Hi Lola69. Were your glands very swollen and that was your only symptom? Thanks for responding.
You are welcome elm!
My cervical nodes were 8 cm and the abdominal ones were around 2.5 cm but they started treatment as it was affecting my hearing , sinuses and that the 8cm node may eventually block my windpipe.
I hope your treatment is working and you are feeling better. This is all very scary.
Treatment is working very well.
Everything is under control now.
The unknown is always scary but CLL IS usually a very manageable disease.
Are you on watch and wait?
I am. I was diagnosed 3 month ago. It was found on a routine blood test. I have a follow up appointment tomorrow. It just freaked me out that I had a pea sized lymph node in my neck. I just think I found another tiny one on my neck. I think getting a CLL diagnosis with zero symptoms was such a shock that I notice every little thing on my body now. I'm so happy that you're doing well.
Thank -You :)!
to my knowledge a normal size lymph node is the size of a pea.
If it was found on a routine blood testing U may go many many many years on watch and wait.
How was yours found? What exactly is sll?
Thanks for your encouragement. I'm 67 so many, many years would put me as ancient!
Small lymphocytic lymphoma (SLL) is a type of non-Hodgkin lymphoma. It is similar to and treated in the same way as chronic lymphocytic leukaemia (CLL). SLL develops when the body makes abnormal B-cells – the lymphoma cells. B-cells are white blood cells that fight infection.
SLL is found mainly in the lymph nodes while CLL IS found mainly in the blood with some node involvement
An elderly friend said she has lymphoma and is taking a pill and feels great. I'm thinking she probably has sll. I'll let you know what my doctor says tomorrow. Take care and thanks so much for your help.
Thanks Scottxxoo. I wasn't thinking I was dying just yet but stressed over what could be lurking. The little swollen glad scared me.
If you have found a pea-sized or bean-sized node, this is normal. Normal lymph nodes are smaller than ½ inch or 12 mm. Don't look for lymph nodes, because you can always find some. They are easy to find in the neck and groin.
You are very reassuring Lola69 and Scott! I'll let you know what the hematologist says when I get home. I plan to go out for drinks with my girlfriends later. Wine ok? Hope so!
Wine is fine but champagne is better.
moderation is key.
I used to drink a glass of wine every night. Now I limit myself to once or twice a week. Bourbon does sound good! I think we all need to get together!!
Bourbon? No! Yuck! Scotch! My cousin and I have battled over this for years. I still haven't brought him over to the right side. All things in moderation, except ice cream.
It sounds like you are an officially boring patient - best kind to be! There is no need to make major changes in your life, though many of us have found that our diagnosis has been a good reason to think about healthier eating and exercise.
I have had all the tests. What is your situation?
What is 13q? I was told I had something with the 13th chromosome. They told me it was all positive. I'm sorry you have such fatigue. I thought the 13th chromosome meant a slow progression. I'm 67. How old are you? Thanks for sharing.
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Decent...hello to Reneé
My lymph nodes are normal now and happy birthday Scott!🍾
Wine is good for the blood and arteries. Whiskey bad for liver.
I can definitely report that Scott's observation doesn't apply to all CLL patients