I have talked and written extensively on the importance of having a CLL specialist on your team. We have even set up for, sadly only for USA patients at this time, free online consults with CLL specialists through our Expert Access program. We believe strongly in it. But not everyone has such expert access, so another option is to become experts ourselves. That's where services such as HU and the CLL Society help. It is possible though more challenging to get excellent care without a CLL guru on your team. You will need to be more assertive and more educated. As we say, smart patients get smart care.
And too many consults can not only be financially draining, they can be emotionally confusing. CLL doctors so often have different opinions and that can be hard to handle and sort out.
If you have a cardiac or renal issue, do pull in the appropriate specialist. Some CLL treatments such as CAR-T or transplants require expanding your team, but most don't.
If you can see an expert, do it, sooner rather that later.
If you can't, become an expert yourself and rely on help here and elsewhere.
Avoid too many doctors for the same issue.
We have info on other aspects of putting your team together on our website in our Toolkit section.
Just my opinion. Find what works for you.
We are all in this together