Hi all Just an update.
As you know I was denied Ibrutinib as I was in remission for 3.8 years and NHS England put a cap at 3 years before relapse. Anyway I've been really struggling and I saw the consultant on Tuesday and he got me in today for the first of 3 strong dosage IV Steriods. The original plan was to get me to August for the new Clare trial. Unfortunately there seems to be a problem with the manufacturing of the new combined drug. When I asked what the plan B was he said conventional chemotherapy!!
Chin up though and I'll enjoy feeling good for a couple of week.