I have cll About 6 weeks other than the bloating and smal pain in my back I have no other symptoms does any know how long before other things happen to me or how long do people live with this I am 54 living in Ireland is there groups in Ireland
Mobile: I have cll About 6 weeks other than the... - CLL Support
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AussieNeilPartnerAdministrator
CLL Ireland is an active Irish support group:
healthunlocked.com/cllsuppo...
As to how long before you notice anything, it depends very much on your staging and prognostic indicators. Your specialist should be able to tell you what stage you are in, but in Ireland I suspect it will be difficult to get much in the way of prognostic indicators beyond the Flow Cytometry test and perhaps a few more blood tests that may be performed by your specialist, such as B2M. CLL Ireland members should be able to give you relevant information, but meanwhile, you may find this post of interest: healthunlocked.com/cllsuppo...
Neil
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