15 Tips to Cope with Scanxiety (Scan Anxiety) ... - CLL Support

CLL Support

23,340 members40,049 posts

15 Tips to Cope with Scanxiety (Scan Anxiety) https://medivizor.com/blog/2014/06/03/15-tips-cope-scanxiety/

lankisterguy profile image
lankisterguyVolunteer
2 Replies

medivizor.com/blog/2014/06/...

Scanxiety

Scanxiety is the term coined for the pre-test and post-test fear that many patients diagnosed with cancer face.

-

Fear of cancer returning is the underlying source of scanxiety and it is the normal reaction to the life changing experience of a cancer diagnosis.

Over 16,000 Google results describe the phenomenon, many of these written from the patients’ and caregivers’ perspective.

Here is some excellent advice from bloggers and healthcare professionals on how to deal with scanxiety.

Before the scan

1) Don’t talk to “problem people” in your life: people who make you feel stressed.

2) Watch what you read…

3) Schedule your scan early in the day…there will be less waiting time.

Day of scan

4) Bring along a distraction like a movie, book, a game…

5) Take a friend with you to your appointment; someone who is calm and can help you laugh.

6) Schedule a day and time to discuss the results with your doctor.

-

To help prevent or reduce scanxiety

-

7) Think about this worry…do you have questions that you have not asked your doctor or healthcare provider? Unanswered questions need to be answered. Write down your questions and do some research to get the answers you need. Believe it or not, having answers reduces scanxiety.

-

8) Ground yourself in what is your reality now. Be in the moment. Write down what you ate this morning, evidence of how your children are coping, recent blood work, anything to get you thinking about your life now.

-

9) Exercise. Exercise is important for combating fatigue and reducing recurrences.

-

10) Deep breathing slows your churning mind and calms you.

scanxiety

-

11) Challenge the fear thoughts. Some professionals recommend cognitive behavioral therapy to help identify thoughts that are not helpful to you.

-

12) Medication can help. Your brain is an organ, like your heart. Anxiety or depression may be caused by a chemical imbalance in your brain. Depression, feelings of helplessness or anxiety are not uncommon for people who have experienced a huge life change like a cancer diagnosis.

-

13) Eat a healthy diet.

-

14) Be sure to do things for you. Listen to music, take a bubble bath, get a massage, treat yourself. Being kind to yourself helps to reduce anxiety.

-

15) Talk to a friend, support group or professional. You may be fortunate enough to have a friend with a sympathetic ear who can listen to you. There are support groups both in-person and online with people who have been where you are with scanxiety. One is #BCSM on Twitter. This tweet chat meets on Monday nights at 9pm ET.

-

It is reassuring to know that you are not alone. If you do not have access to either of these or if your condition is not improving, seek help from a professional counselor.

-

Being Supportive of the New Reality

If someone you know is afraid of scans and their results you need to listen and support—even if you don’t want to hear it again or want everything to go back to ‘normal.’ Because this is part of your friend’s or loved one’s new reality. Scanxiety can rear its ugly head at anytime. As Janet Freeman-Daily states

-

“If I screw up on something important, I choose to think “I’ll do better next time” and I don’t feel frustrated with myself. This technique allows me to sidestep most negative emotions and continue moving forward instead of getting stuck. It even works with scanxiety. Usually.

So why the heck doesn’t my scanxiety respond this time?

I suppose recent events as well as past history have something to do with it. A neighbor who was diagnosed with lung cancer after me died from metastatic tumors in her brain covering a few weeks ago.”-Janet Freeman-Daily

-

Scanxiety Is Normal

If you are experiencing scanxiety, remember you are normal to feel scared.

-

“Scans, worry, being on top of every change in health—that’s not living in fear. That is the reality of being a cancer parent. That is how we found it the first time—it’s how we do our absolute best to keep it from coming back.”-Mediocre Mom

Len

Written by
lankisterguy profile image
lankisterguy
Volunteer
To view profiles and participate in discussions please or .
Read more about...
2 Replies
db601 profile image
db601

Len,

Thank you.

Always great information -

Any thoughts on preparing for contrast tests? I’m concerned with iodine sensitivity.

Although - I have not been allergic in the past , my immune system is now rather fragile ( first outbreak of shingles) - so why not a *first time-to be* allergic to the iodine based contrast. Scanxiety, for sure!

To my knowledge, there is no way for testing for an iodine allergy.

Any thoughts? Have others here had a late age onset allergic reaction to iodine?

I will take Benadryl prior to the scan.

Thanks for your input.

-Diana

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply todb601

Here is a good overview... and seafood and iodine allergy are not the same.

radiology.ucsf.edu/patient-...

Also see

uwmedicine.org/health-libra...

Very good article from Australia on the topic

insideradiology.com.au/iodi...

Not what you're looking for?

You may also like...

UK only - COVID Cancer Antibody Survey

The NHS has launched a national COVID Cancer Antibody Survey to assess antibody responses to the...
Jm954 profile image
Administrator

Open letter from cancer charities to the public regarding vulnerable members of our communities in UK

This is the open letter which has been signed by forty UK charities including six blood cancer...
Jm954 profile image
Administrator

Watch and Wonder, but Do-no matter what stage!!!

Time to post the wondrous things! The gratitude for all the new treatments out there, the...
Chic789 profile image

Dealing with fear

From Justin Brown, IdeaPod (abbreviated) Three friends were sailing, each on his own sailboat. An...
Jm954 profile image
Administrator

Simple, practical ways to improve our immune systems

Here are some great tips from Professor Janet Lord (University of Birmingham, UK)....
PaulaS profile image
Volunteer