Absolute Lymphocytes:: I was told today that my... - CLL Support

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Absolute Lymphocytes:

Valour profile image
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I was told today that my absolute lymphocytes is 3 last week my WBC was 5000 I asked her to repeat expecting to hear 3000 300 but 3. Is this even possible. What am I missing. This was a phone call as I developed a tennis like elbow but lower and I was asked to go to the lab for testing. These results are not due to this new lab but prior labs. Has anyone developed a large mass just below the elbow and blue all around it. Any wisdom would be greatly appreciated

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Valour profile image
Valour
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AussieNeil profile image
AussieNeilPartnerAdministrator

Confusingly, there are two reporting standards in general use for measuring white blood cell counts. Which is used depends on the pathology laboratory, so it is likely your medical practice gets reports from laboratories that express lymphocyte counts in both systems, i.e. cells per litre and cells per decilitre - a tenth of a litre). There's a factor of 1,000 involved so I expect that the "3" of your last result equates to "3,000".

Both WBC counts are near normal, so the acalabrutinib is obviously working for you.

I hope you quickly get an answer to what's causing that large swelling below your elbow - it must be very worrying.

Neil

Valour profile image
Valour in reply toAussieNeil

It is smaller than early today but it is definitely in forearm but earlier I couldn't tell as it was very large. Thinking I should call team back again.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply toValour

Is it strange..YES..then CALL...it might be a bleed...

I have had ample bleed experience on Imbruvica (ibrutinib), Calquence (acalabrutinib) is the same family.

~chris

Valour profile image
Valour in reply toCllcanada

What do they do for a bleed as I did talk with an intake as the team is off till Tuesday but if its not better by AM I'm going to ER as suggested. I really think it is a bleed and has stopped.

Valour profile image
Valour

For those who are 17p deleted (I also have trisomy 12): Diagnosed on 11/2017 and put into fast tract for treatment: Last Wednesday I received my first dose of Venetoclax and again happy to say no reaction. This was the first time I received all three drugs in my Trial, Acalabrutinib, Obinutuzumab and Venetoclax. My number are great they say and the one that needed attention was my calcium which they gave me two calcium pills. The issue I had with my arm was resolved as a bleed and is now almost gone. I am experiencing some renewed energy and hoping it continues like before to a very acceptable level. So new to this that I'm wondering if this is normal and will I continue to go up and down with periods of fatigue? I will go to once a month visits in September 2018 and starting January 2019 I will be going every 3 months for the year. If all continues to go according to plan Cancer research is making wonderful progress and quality of life through this treatment was without side effects that caused me to put my life on hold like you would see not to many years ago. So thankful that words can't describe and praying it continues on. When my Oncologist told me not to quit my job I was puzzled but so glad I didn't. Hoping you all find the right Trial Study that gives you the results we all need.

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