35 year old with CLL

[Kazzie12]

my 35 year old son was diagnosed with CLL in September. on watch and wait, though now lymph nodes are enlarging. Would like him to see a doctor that has experience with his age group.

[Jm954 Administrator]

Hi Kasren,

I'm sorry to hear about your son and his diagnosis at such a young age. You need to let us know where you are in the world/country and hopefully someone will be able to make a recommendation.

It might also be helpful to lock your post as it might generate more responses. If you click on the little v in a box next to the 'Follow post' box you can lock it so that only members of this community can see your post and responses. Otherwise your post and responses are available to the whole internet community.

[DPhillips]

Hi Kasren. My daughter at age 29 was diagnosed almost 3 years ago this month. She was diagnosed from a node biopsy on the back of her neck. She has been on watch and wait since and goes for 3-6 month appointments for checkups. She is now 32 and just had a baby this past December. Her WBC count actually dropped after pregnancy to the 11,000 range from like 16,000. I know this diagnosis must be very hard for all of you. My daughter seems to put the diagnosis in the back of her mind but my husband and I live with the fears each day. I try to cope by realizing that many people deal with chronic illnesses all around us and that life can sometimes be hard and you just have to keep moving forward. I hope and pray that if and when treatment could be needed that the research has progressed even further. Just make sure you connect with a CLL specialist or at least know of resources and doctors if your sons illness should progress past the needs of a regular hemotalogist. Also stay up to date on educating yourself. My husband and I often go to informations sessions specifically for CLL. It's important for your son to have a health advocate if he himself doesn't seem to be too involved in his diagnosis. Just hang in and educate and just keep living. You will have a new normal but time will help.

[lankisterguy Volunteer]

Hi kasren,

Welcome to the group that no one wants to join.

There are past postings about younger patients- please look for a box labeled "Related Posts" (upper right column on computer screens, way below on mobile devices).

We may be able to help you find a doctor for your son, but it is unclear what country and health system you are in. So I suggest you go back and edit your original posting to add a location, and also change the security to restrict your post to this community. See this "Pinned Post" and paragraph 4) & 8) for details:

healthunlocked.com/cllsuppo...

We are very willing to help, but also want to protect your privacy and our own.

Len