CLL at a age of 35

[Supratim]

I also have been diagnosed with CLL at age of 35.Can anyone suggest any diet instructions. Thanks

[Jm954 Administrator]

Hello Supratim,

I'm sorry to hear you've been diagnosed with CLL at such a young age but welcome to this group where you'll find support and information. Hopefully it will be many years before you need treatment, if ever, and there are lots of new, non chemotherapy treatments, available which are showing lots of promise for us CLL patients.

There is NO KNOWN diet or supplement that can affect or delay progression of your CLL. The important thing is to have a good, clean diet and get fit for whatever treatment the future may or may not hold. As well as physical fitness that also includes getting all the vaccinations that will help you remain infection free as soon as possible because in years to come you may not be able to mount a good immune response.

PaulaS posted some very good advice about vaccinations, here it is: healthunlocked.com/cllsuppo...

Please ask any questions you may have and let us know how you are.

[zaax]

I think normal diet applies: eat your greens; not too much red meat oily fish; drink least 2 litres of water a day. at least 200 mins of moderate intensity exercise a week - walking a dog 5 miles a day is even better.

[closh]

Hi Supratim

Like the others have said, there's no specific diet that will help. It is very important though to eat a good, balanced diet (no need to be obsessive though - enjoy treats), exercise, get enough sleep and keep a good mental attitude. You also need to have regular skin checks and use sunscreen (we are much more susceptible to skin cancers) as well as get all of your vaccinations up to date.

Basically, you just need to live a good, normal life but keep an eye on your health. If you get sick - go to the doctor early as your immune system may not fight things off as effectively as before.

Another bit of advice I suggest is don't have any CT scans unless there's a very good reason. You do not routinely need these but some oncologists like to order them just to see what's happening with your internal nodes. If you're not having any serious symptoms - I'd ask whether they are essential and what alternatives are available. There's a fair bit of radiation from CT scans that is good to avoid unless really necessary.

The usual, and very wise, advice here is to see a dedicated CLL specialist before you start any treatment. General haematologists or oncologists are very unlikely to be up to date on current treatment options. There's some good ones available or in development and with good treatment you should expect that you'll have a normal life expectancy and CLL will be more of an inconvenience to manage rather that one of the horrible cancers that you've probably seen others suffer with.

I'm undergoing treatment at the moment - you wouldn't know it; I just pop a couple of pills each day and my lifestyle isn't affected (other than some interruptions for Dr visits). I'm just back from 2 weeks skiing each day in Japan and go off for assessment on Tuesday to see if they can find any CLL cells left in my blood or bone marrow (MRD assessment).

Ask any questions - some people on this forum know much more about CLL than most Drs!

Graham

[MsLockYourPosts Passed Volunteer]

Supratim - Welcome to the club no one wants to join. Getting a CLL diagnosis is a shock, but many live very normal lives with it.

The people above have given you all of the important basic advice. Most important is to start looking for a CLL specialist to monitor you. General oncologists and even most hematologist's are simply not up to date on CLL. DON'T let anyone rush you into treatment. If you post your general location others here may be able to suggest someone near you.

You might want to "lock" your posts so you don't find them on google or elsewhere. You also tend to get more answers, and more complete answers to locked posts, as the original post controls the privacy of all of the responses to it. To do so click on the v next to more, then edit, then change the setting at the bottom from everyone to community.

[Supratim in reply to MsLockYourPosts]

Thanks

[barger1951]

I eat organic, very low sugar, fruits, vegetables. No red meat or very small portions. Exercise (very important), meditate at least 4 times a week. Laugh, dance and make romance!

[Hoffy]

I personally know someone brought their white count down from 150,000 to 50,000 on a raw food low sugar vegan diet . It took her about six months. It is not an easy diet though .

Get the book and of wine. By Glenn Sabin. He got CLL Young and was eventually able to beat it with supplements and diet per the book . He had some treatment along the way as well.

There is evidence from a phase 2 clinical trial out of the mayo clinic that high dose green tea can be effective. I have posted on the subject in the past. It’s important to work with a doctor if you are going to do it though to make sure your liver function is good .

The movie forks over knives on Netflix is helpful. Also the movie food choices on Netflix .

Be well ,

Hoffy

[alpha-b]

I was diagnosed an year ago at he age of 37. Till now I don't need any treatment. I went to a dietitian and she suggested me to go completely organic, which I did for couple of months and it really worked. My WBC dropped from 25 to 18. But its very hard to follow and need a complete change in lifestyle. I still try to follow it but sometimes eat a bit junk food and bakery items.

My WBC now is hovering between 24 to 26. I go to gym, play badminton, spend time with my kids and enjoy the life to the fullest. Hope in near future we can have a non toxic treatment for our CLL.

[Cfighter]

I'm new to this site but not to this disease. You absolutely need to be vigilant about what you put into your body as fuel.I'm not making a statement to say that if you eat a certain way you will be "cured as it is" but you do need to get all your vitamins , minerals, and trace elements up in healthy ranges, and if your ill, then you can know that isn't the case. Plant based organic or at least non-gmo ,with a bit of grassfed or wild caught ( clean choices of any meat ,dairy ,etc)loads of greens,dark lettuces,broccoli and broccoli sprouts(packed with goodies)lots of carrot juice(organic)gives you a powerhouse of vitamin A and facilitates many body functions.I drink a quart of carrot juice a day and exercise an hour everyday ( grab a rebounder for your house,they're great,not expensive,google em) ,and I do as much as 6 mile mountain hikes on a regular basis. I've had cll for 5 years and am just now being treated (last 3 months~Imbruvica) for first time with any meds and I do have markers for faster progression.That said, I'm a 62 year old woman and am super fit and absolutely know that my fantastic~miraculous turnaround and ability to take this harsh med is because of how I'm treating my body.I pray that you are doing well, in mind,body, and spirit my friend.

[Supratim in reply to Cfighter]

Thanks a lot for Ur guidance