After Imbruvica: After a first round of FC made... - CLL Support

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After Imbruvica

lilica955 profile image
6 Replies

After a first round of FC made 8 years ago, now is time for treatment. My hematologist suggested Imbruvica.But if my CLL does not respond to that,what kind of treatment could I still have:chemo or something else.

Thank you in advance for any shared opinions!

Best wishes for all,

Lilica

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lilica955
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6 Replies
Ohannie236 profile image
Ohannie236

Hi, lilica. Sorry, I can't answer your question, though I think there are several possibilities. Others here know much more. But just wanted to wish you the best as you make your decision. I'll be starting treatment soon too, with FCR, and feel much better now, having a plan of attack. Good luck to you as you go forward!

SunnyCA profile image
SunnyCA

I was treated with chemo first and relapsed after two years. I’m on Ibrutinib now and things are going on the right direction. What my Mayo doctor tells me is the combination therapies are holding good promise for deeper remissions - there are many drugs coming down the pike and soon. Our future looks bright - so I take much heart. All the best.

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MsLockYourPostsPassed Volunteer

I don't know where you are (you would want to lock your post, probably if giving specific information about yourself), but you might ask about trials that might be an option for you. There are some newer ones that are showing very good results, and acalabrutinib should be coming out of trials soon (second generation ibrutinib which seems to present fewer side effects for most.

lilica955 profile image
lilica955

Thank you very much for your reply !

I hope that we all have the best part for everyone!

Good luck to all CLL's,

Lilica

Ellieoak profile image
Ellieoak

Yes if Imbruvica doesn’t work ventoclax will. Or the dr. Might try another chemo.

I have been on Imbruvica for 5 yrs minor problems that have been solved with modern medicine. Don’t worry so much. Enjoy the ride. Anna

lilica955 profile image
lilica955

Thank you for yours words that calm me !

Best wishes,

Lilica

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