Hi feeling positive after a 5 year w&w today I started my trial of inbrutinib and venetoclax for 1st line treatment here in uk On ibrutinib for 8 weeks then add venetoclax over a few weeks untill I reach higher dose . Been reading posts on treatment and Im hoping for a minimum side effect journey
flair trial started today: Hi feeling positive... - CLL Support
I to am on the flair trial in the UK ,and also was very lucky to get ibrutinib and venetoclax .I have been on ibrutinib and the maximum dose of venetoclax now for 3 months .I have had an excellent response to this treatment with virtually no side effects.The most important thing is to keep well hydrated while taking them .Best of luck and hope you do well on this treatment.
Hi firstly good luck to you I hope your journey will be smooth like mine. After 9 months all my number's are within the normal range waiting for the results of bone marrow and scan on November 26th. I have not had many side affects just aches and pains in joints plus a bit of nausea odd bruises also mouth ulcers but nothing I can't cope with. Now back in full time work and feeling great.