5 years on ibrutinib (IMBRUVICA): Good news... - CLL Support

CLL Support

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5 years on ibrutinib (IMBRUVICA)

DrLV profile image
DrLV
15 Replies

Good news:

drlaverne.blogspot.com/2017...

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DrLV
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15 Replies
Justasheet1 profile image
Justasheet1

Dr. I always follow your posts. I'm very happy for you.

Jeff

PlanetaryKim profile image
PlanetaryKim

Wonderful! Congrats!

cllady01 profile image
cllady01Former Volunteer

Congrats on your milestone. And, thank you for your efforts toward drug payment parity for Medicare patients with cancer.

DrLV profile image
DrLV in reply to cllady01

I think drug parity is one of the most difficult missions I have had to push. Cancer treatment is cancer treatment whether it is through the veins or in the mouth. What we need more of on this earth is a thing called common sense. LOL.

AmericanRonin profile image
AmericanRonin

Slay that dragon!

DrLV profile image
DrLV in reply to AmericanRonin

Wave HELLO to my relatives in Japan. LOL. I am half Japanese and half German -- a regular rice schnitzel!

AmericanRonin profile image
AmericanRonin in reply to DrLV

My 7-year-old son is half-Japanese, one-eighth German, one-eighth Scottish, and one-quarter Italian!

Bubnojay profile image
Bubnojay

Thank you for sharing your inspiring journey DrLV.

Huge congratulations the power of our minds and the refusal to be beaten is a powerful thing.

Hope our community members currently struggling with their diagnosis read and take heart.

Long may you be an A1 blogger.

Bubnjay1

DrLV profile image
DrLV in reply to Bubnojay

The mind is a powerful tool when dealing with a cancer diagnosis. Sometimes in life attitude is the only thing we have control of.

newyork8 profile image
newyork8

So your immumogloblins improved on Ibrutinib? Is it clear that Ibr typically improves immune function? Thank you and best wishes!

DrLV profile image
DrLV in reply to newyork8

An article from The Journal of Clinical Investigation (J Clin Invest. 2017. doi:10.1172/JCI89756) written by M.Long et. al (2017) is titled "Ibrutinib treatment improves T-cell number and function in CLL patients". It is worth a read.

jci.org/articles/view/89756...

gemit2000 profile image
gemit2000

just discovered you and your blog and read your "CLL bio". Congrats on your pioneering and your anniversary as we all move toward a time when non-myelosuppressive approaches to CLL can become potentially potent enough (omnipotent?) to render the dragon impotent - enough to keep that MRD negative status even after ending Tx. Continued good health and positive results toward becoming MRD negative.

DrLV profile image
DrLV in reply to gemit2000

I want MRD negative for all CLL patients. Thank you for your kind words.

mgh348 profile image
mgh348

Congrats and best wishes. Love your graphic used on the T-shirts!

DrLV profile image
DrLV in reply to mgh348

Thank you. Pharmacyclics made t-shirts with my painting on the back for their employees who participated in a cancer run. My painting is hanging in their lobby in California.

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