I've been happily (more or less) living with CLL since being diagnosed in 2005 just before my 36th birthday. I've been on watch and wait ever since, with no real movement in my WBC or platelet counts. My only symptoms are slightly enlarged lymph nodes in my neck - which haven't budged in size since I first detected them (they were the immediate cause of my making the appointment that led to my original diagnosis 12 1/2 years ago).
Non-CLL-related blood tests at the end of last year raised the possibility of raised levels of parathyroid hormone that could indicate hyperparathyroidism. Occasional tests since have been inconclusive, though the levels remain raised. I'm currently in the middle of the next set of tests that hope to settle this (my next blood test is on the 9th of August - which is a follow up to a test two weeks ago where they didn't get enough blood for solid test results; my poor arm veins are taking a bit of a battering right now).
Obviously I can talk to both my CLL specialist and my GP as need be, and fully plan on doing so once I have a clearer idea of what's going on but - if the new diagnosis turns out to be positive - it's very hard to find any information on the combination of CLL & hyperparathyroidism. The only published literature I can find dates to 1978, which presumably makes it functionally useless given how much the medical landscape's changed in the last 40 years. But this does seem to be a very unusual combination of medical conditions; and it's not as if I need another medical condition that can lead to 'weakness and fatigue' (though, touch wood, no problems with the latter on the CLL front as of this writing).
I don't suppose there's an off chance that anyone here has any experience with this combination?