Weird red Mark on my leg.

[Hoffy]

Weird red Mark on my leg.

I am on imbruvica plus Venetoclax clinical trial.

Is this something that happens with ibruvica ? Or V? Anything to be concerned about?

Trial has been going well. Blood levels are back to normal within four months of starting a trial. I feel good energy has gotten much better. My large Nodes went down within a week .

I had cellulitis about a year ago and had a big red spot on my leg 3" in diameter so that's the only reason I'm concerned with this. Then my nodes were big in itself painful. Overall I feel very good Now.

[Kevin54613]

I have been on Imbruvica for 16 months. Yes, I also get some skin marks/issues. Seems like skin is more sensitive to the sun also.

[lankisterguy Volunteer]

I've posted several times that each of my 4 treatments for CLL caused skin rashes, Imbruvica was the worst for me. I also believe that Imbruvica is known to affect blood clotting and I saw frequent and unusual bruises appear when I did not recall impacts in that location. Also several of the bruises stayed red and never turned purple or yellow. Skin biopsies found significant accumulations of T cells and B cells in a specific - deep skin layer.

Len

[newyork8]

Thats great. Where is the trial may I ask?

[Hoffy in reply to newyork8]

UCSD in San Diego. It has been good so far. I take both In the evening and don't have many side effects.

Hopefully working while I sleep !!

[BCTexas]

I occasionally get these red spots but I havent started treatment yet. Not sure what it is.

BC

[Hoffy]

Thanks

[kimiD]

I'm on ibrutinib and get red marks on my skin fairly often. They seem to be lessening with time. Are you on the full dose of 3 capsules per day?

[Hoffy]

Ok. Yes. 3 per day.