Infections with CLL From Majer1: In January I... - CLL Support

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Infections with CLL From Majer1

Majer profile image
8 Replies

In January I was in the hospital for 2 weeks in New York with Pneumonia and Sepsis due to my low Immune system with CLL and Imbruvica I was very weak when I came out . I have also a Thyroid cancer That I hope will be taken next month. I had CLL 10 years ago and on Imbruvica 7 month .(during my sickness i stop Imbruvica

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Majer profile image
Majer
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8 Replies
cllady01 profile image
cllady01Former Volunteer

Majer, do you mean you will no longer be on Imbruvica? Sorry you have had such a rough time.

I hope you are feeling better and that the thyroid operation goes well.

ap64 profile image
ap64

Not a good time for you. Hope things will go more smoothly as the spring progresses. will say a prayer for you.

Bubnojay profile image
Bubnojay

Sometimes we think life is tough, and then it goes and gets worse.

So sorry to hear your news, hope that the operation is soon over and you have kicked that thyroid cancer into touch. Times like this we find we have extra reserves to get over these operations and treatments, wishing you strength, and a brighter future minus that cancer.

Do lets us know how you are when you feel up to it.

Sending positive thoughts and huge hugs.

Bubnjay1

Elliot43 profile image
Elliot43

Oh majer I feel so much for you. I do hope you have a supportive family or partner or good friend to help you through this bloody awful time.

Let us know how you go when your feeling stronger

Sheila

pkpayne profile image
pkpayne

This sounds like a really bad spot for you right now. I hope your surgery is a success and that you will be on the mends soon.

Ajkeli73 profile image
Ajkeli73

When it rains it pours. Tomorrow is a new day believe and the sun will smile on you again soon Majer.

PThomas profile image
PThomas

I have just been released from the hospital after staying a month for pneumonia and am weak. Have you progressed? I am still doing physical therapy 3 Xs a week and I also have been off the Imbruvica and will restart on one cap when I have to have treatment according to my lab numbers, I was just hoping that you could tell me that you are doing better and getting stronger.

Majer profile image
Majer

I am on Imbruvica from September 2016 taking 3 pills a day and as I am on my wife insurance I was paying $ 25.00 dollars for a month supplies . My wife took a retirement after 30 years in the NY from the school system , and we apply for Medicare,and from

Emblem health and we have optional Rider and Ship and the price went to $ 4500.00 for a month . the cheapest I find was $ 550.00 for a month. I am 80 years old and I find this prices out of reach . Is somebody able to tell me a better price or $ 550.00 is the real price.in Brooklyn N>Y>

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