I haven't written much. Based on good advice received here, in April I met with a blood cancer specialist who reviewed my diagnosis of CLL and treatment thus far. He took me off of my Rituxan 2 year maintenance plan. I return to see him in this month for follow up - he wanted to re-do all of my pathology reports.
For about the past month, I have had really bad headaches. I have chronic sinusitis and usually suffer from sinus headaches. The headaches I am having almost daily are worse than my typical sinus headache in that I also feel nauseated and a certain bit of vertigo. GP has put my on a round of prednisone previously (which I hate!) and I don't think it helped.
Has anyone suffered from increased headaches or sinus headaches that have gotten worse with a CLL diagnosis? All my old stand-by remedies are not helping this summer and it has definitely increased my fatigue level.
Best wishes to all! Susan