Hi Everyone, I just wanted to let you know the latest (at last) good news my husband has received today. We went to see Dr Bloor at The Christie this morning following months of uncertainty his platelet count has increased to 33 (not high in the great scheme of things) from 6 last week and we also received the fantastic news that he is able to be treated with Idelalisib + Rituxin starting next week. We are hoping that this treatment will do the trick, so fingers crossed.
Regards to you all
Lots of love June
Written by
june65
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So pleased to hear your good news, June. Great to know that your husband's platelets have increased (every little bit counts), and that he's going to start Idelalisib soon. Do let us know how he gets on.
It's now over 2 weeks since I started on Idelalisib, and I'm still doing well. No side effects so far.
Wishing you both all the best for this new stage in your journey,
That 6 to 33 jump in platelets is BIG news; your husband has successfully jumped the largest hurdle in starting treatment. He has jumped from deep into grade 4 thrombocytopenia where spontaneous bleeding is likely, into grade 3 thrombocytopenia. That gives you both hope and more importantly hope that is based on an extremely encouraging result - actually being able to start on the road to recovery other than facing what must have seemed a near insurmountable barrier. Your husband is now clearly in the race to pick up speed to clear the smaller hurdles in the distance if you'll pardon the sporting reference.
By posting good news you are giving a lift to many others on this forum.
Likewise, when we read of those going through more difficult times, then we are reminded that we are not the only ones going through the troughs and don't feel quite so alone.
So good news or bad, please keep in touch - but so glad the news is so positive for you both at this time. Long may it continue.
I'm so thrilled for your husband and for you! What seems not terribly significant to someone going through life healthy can be absolute gold when dealing with a major health issue. I so glad that your husband can start Idelalisib and Rituxan. I wonder if this will become Z / R. Every time I learn the names and abbreviations for something it is changed.
So thrilled for your great news. Sounds like your body is making a comeback! The love and support of a loving partner is not to be underestimated. Eat your fruits and veggies and stay positive. Think of us during your treatment sending our love and support because we all are!
A very big thanks for all of your replies. I'll keep everyone informed with Ken's progress when he starts his treatment later this week. Your support and good wishes mean a lot.
Fantastic news !! ... I bet I've smiled at you lots of times sat in department 26 at the Christie, I was there on Friday too ... Small world !! , keep us posted on how your husband is doing ...
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