It's our BIRTHDAY! One year ago today, our website was launched and what a year it has been. We are so appreciative of the support and feedback that we have received over the past year. We're excited to be able to continue our efforts to address the unmet needs of CLL patients in 2016 and we hope you will continue to share your thoughts with us. What are we doing well? What could we do better?
Please take a look at our newsletter cllsociety.org/newsletter/ : articles written by patients, basic stuff on what’s the spleen and Dr. Mato on research with pretty good news for those who relapse after ibrutinib or idelalisib. And much more.
Plus we have a short survey asktellq12016.questionpro.com on how we patients and caregivers make decisions about our therapy. I hope to present the results at EHA and maybe ASH so I am asking you to please complete it.
Stay strong.
We are all in this together.
Brian
Written by
bkoffman
CLL CURE Hero
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Congratulations Brian, on establishing cllsociety.org as an excellent international resource for CLL patients. You've had a very busy year and have achieved a great deal.
I'd encourage everyone to complete the survey: asktellq12016.questionpro.com I found a few questions took a bit of care to complete accurately - understandable given the complexity of some of the questions, but the survey checks if any questions haven't been completed thoroughly, then re-present the survey, indicating those needing a bit more work with a message in red text.
It will be very interesting to hear how CLLSA rates as a source of support in the next newsletter!
Have you completed the CLLSociety survey yet? Brian says "I hope to present the results at a symposium at the 2016 European Hematology Association Congress in Copenhagen in June, so I am asking you to please complete it. It takes less than 5 minutes. Many thanks to the 78 folks who have already done so!"
Surely we can greatly exceed the 78 responses to date - particularly when Brian's society is trying to help us identify where the CLLSociety can best help us through seeking our input?
In today's CLL Society alert Brian states "As I prepare to speak at a symposium at the 2016 European Hematology Association Congress in Copenhagen in June, I am asking you to please consider completing our Reader Poll on how we patients and caregivers make decisions about therapy. It takes less than 5 minutes to complete. Many thanks to the 165 folks who have already done so! We'll present the aggregated results in a future issue of The CLL Tribune."
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