I have a friend who has been on a trial and was on the ibrutnib
He has had a partial response and it is keeping his blood levels under control he is well and it is working.
Yesterday he was told he is being taken of the trial because America have said he has not achieved a complete response.... .......hold on this is not a game this is working but because it has not achieved 100% he can't have it!!!!!!!
This is bullshit how can this be ? who the hell do these people think they are ?
I fundraise for research and then to find out drugs are working and then people are told you can't have them is just not on.
Has anyone else experienced the same ?
The trial is being done at OXFORD