Black Seed For Treatment Of Cancer

[AAli]

Mix 1 kg of oil of the black seed with 1 kg of honey; simmer for 15 minutes, add ½ cup of lemon juice; then allow to sit in a cool place. Take 2 tsp every morning for three weeks.

My neighbor strongly recommended it, if any one want to try. Having no side effects.

Best wishes

[AussieNeil Partner Administrator]

Hi Aali/Aamer,

I think pretty well nearly all of us have been offered remedies to cure our cancer by well meaning friends and acquaintances. Unfortunately, hardly any of them have any personal experience of our particular cancer or are CLL specialists. I've had suggestions from well meaning folk on what I should take to boost my weakened immune system and with a little bit of research, I found out that it would have also worsened my CLL.

While your neighbour's recipe is unlikely to do you any harm, it is also highly unlikely to treat your cancer. If that recipe worked, people enduring 6 months of gruelling treatments that clinical trials and subsequent studies have proven work better than alternatives would be rushing to take it.

When well meaning folk offer such cures, I find it is best to just thank them and say that I'll check it out, which I usually do and very rarely find that there just may be a benefit. After all, many of our effective medicines come from observing the biological effects of substances derived from animals, plants, fungi, etc, isolating the active ingredient and formulating it so that it is better tolerated and more potent. But sadly, most of the time you just get your hopes up, waste some money and time and nothing happens - sometimes you can even worsen your health. We all have our good and bad days, weeks and even months with CLL, which makes it very hard to work out whether something new you are doing has actually helped.

Neil

[AAli in reply to AussieNeil]

Agreed

Another thing that any vaccine is needed to support our immune system?

Regards

[AussieNeil Partner Administrator in reply to AAli]

It is important to get our non-live vaccinations up to date as soon as we can after diagnosis with CLL, as our ability to respond to vaccinations reduces both with age AND with CLL.

That's covered in part 1 of Coping Strategies for living with CLL by PaulaS:

healthunlocked.com/cllsuppo...

There's lots more that you should find interesting in Parts 2 and 3 as well as other posts in our Pinned Posts section, which you'll find on the right side of this page:

healthunlocked.com/cllsuppo...

Neil

[Mike113 in reply to AussieNeil]

Hi Neil,

Just currently going through the pneumonia vaccine process at the moment with the Gp. He does not know why we should have the prevnar. 13 first. He is of the opinion pneomovax 23 is sufficent, and I haven't got the right answer in my head as to why these forums recommend both vaccines. We were given the flu shot on Sunday with the pneumonia vaccine/s to follow. Any advice would be appreciated thanks.

Mike

[AussieNeil Partner Administrator in reply to Mike113]

Mike, It depends on where you live. You can refer your GP to this page on the USA CDC recommendation for leukaemia patients (courtesy of Chris/Cllcanada):

healthunlocked.com/cllsuppo...

or PaulaS for the UK

healthunlocked.com/cllsuppo...

For more (it's a common problem with GPs because we're a rare lot), just enter into Search (top right of page) 'cllsupport pneumonia vaccination'

Neil

[Mike113 in reply to AussieNeil]

Thanks Neil, we're from just outside Brisbane.

[AussieNeil Partner Administrator in reply to Mike113]

Mike, See my response below:

[AussieNeil Partner Administrator in reply to Mike113]

Mike, the relevant immunisation protocol for Australia is documented in the link below, and you do qualify under Category A - immunocompromising conditions, including: haematological and other malignancies ... for up to 3 Pneumovax 23 vaccinations in your lifetime, with a minimum of 5 years between vaccinations

immunise.health.gov.au/inte...

Note the section Adults aged >=18 yrs under4.13.7 Recommendations: "Although 13vPCV is registered for use in adults aged ≥50 years, there is currently insufficient evidence to recommend its use in preference to 23vPPV at the individual or population level for persons aged ≥18 years who do not have a condition(s) associated with an increased risk of IPD (see 4.13.4 Vaccines above). Updated recommendations on the use of 13vPCV in adults without an increased risk of IPD will be made when more data are available (see Immunise Australia website)." In section 4.13.4 it also says: "13vPCV has also been registered since October 2011 for use in adults aged ≥50 years, based on immunogenicity data showing equivalent or better antibody responses than those provided by 23vPPV for the shared vaccine serotypes. There are currently no data on clinical outcomes for 13vPCV, but a study examining its efficacy against pneumonia in adults is underway.41 In the absence of evidence of superior effectiveness against IPD or non-IPD pneumonia, the relative benefit of 13vPCV over 23vPPV for adults is uncertain, since the serotype coverage of 13vPCV is more limited. It is also uncertain whether the level of reduction in IPD due to the additional serotypes contained in 13vPCV among adults (herd immunity effect) will be similar to that seen following widespread use of 7vPCV in children."

The way this reads to me, it doesn't preclude you having the two different vaccinations (with a gap of 2 months recommended), so you might be able to convince your doctor to give you the two vaccinations two months apart if you are in a situation where you are at a greater risk of being exposed to the pathogens responsible. The dilemma the authorities have is that there's evidence that people respond better to Prevnar 13, but it doesn't give as wide a coverage of pathogens as the Pneumovax 23.

This interpreted version might be easier to read:

nps.org.au/medicines/immune...

(I've replied here so that the column is easier to read - not so squashed up.)

Neil

[Mike113 in reply to AussieNeil]

Thanks so much for the help Neil!