I just posted on my blog (http://bkoffman.blogspot.com ) about some very questionable advice from a syndicated medical doctor about CLL/SLL: if the disease is mostly in the lymph nodes, then radiation treatment usually is used, even in asymptomatic early disease.
Wait a minute! Where is that in any guideline?
It is dangerous misinformation such as this that reenforces the need for trusted patient forums such as here and reliable vetted websites dedicated to CLL such as our newly launched cllsociety.org.
It is why we need to get second opinions when we get a sense that something might be wrong.
It is why we need to be our own best advocates.
We are all in this together.