I was diagnosed by accident while being examined for breast cancer lumps. Luckily (or not) the radiographer didn't like the lump on the side of my breast and did a biopsy only to discover that I had CLL.
My point is there are many worse diseases out there, more horrific and unbearable, we can still have a reasonable quality of life and I am nowhere near death yet! I have my private moments when I am so exhausted and bone weary that I want to just lie down and die, but it is a passing moment. What makes this so awful is that people don't understand the fatigue and waking up feeling washed out, I am also not too keen on the disfiguring lumps growing out of me because I always thought I was pretty (not so much now) Somehow, this doesn't seem as important anymore, but that doesn't mean I don't make the effort. You have to smile put on a brave face and get on with it! We have company, we are not alone and many people feel our pain, we have each other and can always communicate and be strong together.
Wishing you all strengh to cope and enjoy life.
Blessing and hope to all,