I have had CLL since 2006, I was 59 years old when I was diagnosed. I have had chemo with RCD twice, 6 treatments in 2008 and 3 in 2013. I have a number of negative prognosticators, ZAP 70, trisomy 12, CD 38. I developed a rash about 3 months ago. 2 dermatologists have done biopsies which show Granuloma annulare. I have done some research on CLL with this skin disorder and have found some alarming information about this possibly being a precursor to lymphoma. My WBC is rapidly going up, my nodes are enlarged and my MD is considering starting Ibrutinib in the near future. Does anyone have any information about this? I am very disappointed that my MD and both dermatologists told me that this skin disorder has nothing to do with my CLL, I now think they are trying to shield me from the truth.
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