Hi Everybody and thanks to everyone that took the time to reply to my posts.
I am from the UK and am being treated for CLL at the Kent & Canterbury Hospital. Since finishing my chemo in January. I have been full of aches and pains and fatigue which is still with me 10 months later. I have not let this stop me doing things and I was playing Badminton twice a week and swam regularly in the sea and pool but was always tired and took a lot of effort to do. As the months rolled by since my chemo finished my WBC slowly increased from a low of 15 to 42.1 when I saw my consultant I said I did not want to have anymore chemo as it just made me feel generally unwell all the time. She said well when we think that I am ready for more treatment we will try me on IBRUTINIB I said when will that be she said when my blood counts were at a stage where I needed more treatment. So I said I don't want to hang around waiting in the cold months of winter in the UK can I go on holiday, she said yes so I took the next available plane out to Thailand. You see before my CLL was diagnosed last July I had spent the last 14 winters backpacking in various places around the world for six months from October to April and I missed it last winter because of treatment. So here I am out in the warm again which makes me feel a lot better but still not fit enough to travel on any further so Will just stay put here. My WBC have gone up again but I am hoping I can hang in until next April. WATCH THIS SPACE!!!!!!!!
And good luck to everyone else. John