A recent survey of PatientsLikeMe members in the US reveals patients' willingness to share their health data online. See the post at gotcll.com/2014/02/11/patie... for more information about the survey, links to the PLM website, and a snapshot of the Overview page for CLL showing that, currently, 356 PLM members report having CLL.
Patients' Willingness to Share Health Data Online - CLL Support
Patients' Willingness to Share Health Data Online
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