2 months post Kasai

[Agastya-sri]

My son had gone through kasai on 85th day and post that stool was yellow or light green through out. 2 months after the surgery we noticed that bilirubin was increasing by a point or two. We consulted specialist and got to know that he might have low grade cholangitis although stool color was yellow. He is admitted since 2 weeks and have developed multiple complications like ascites, hepatic encephalopathy, increased ammonia. I m worried about him and wish he doesn't need transplant. If anyone has similar experience please share.

As a suggestion, please keep a close watch on your child's health post Kasai, as yellow stool sometimes could be misleading.

[baby1311]

Hi, how is your son doing? I am in the same situation except my son had a liver transplant 3 months ago, he had 2 episodes off colangitis and distended abdomen, liver and spleen were very big but stool colour was ok. Don’t be scare if he needs a transplant this is the next thing if Kasai is failing. It is a bumpy journey but now seeing him with so much energy and rooming around the house makes me happy. This is the treatment for their condition

[Agastya-sri in reply to baby1311]

Hi baby1311, my baby was hospitalised for 19 days with gradual deteriorating condition. He could not survive after tough fight with extreme symptoms.

But glad to know that your son is doing well. All the wishes for his good health.

[baby1311 in reply to Agastya-sri]

I am so so so sorry to hear