biliary atresia

[ZOO1]

Hello everyone,my daughter is 6 months old,has biliary atresia,awaiting liver biopsy results ,what can be done to keep the baby from feeling weak,we found out that she has a problem when she was 2 months,doctors said she is too old for a kasai procedure

[ZOO1]

please help

[sameerudeen]

Where do you live?

The kasai should be done as soon as it is diagnosed.

[ZOO1 in reply to sameerudeen]

I live in Botswana,It is very frustrating because the doctor said he cannot do the kasai to a baby who is over 8 weeks,he said chances of the operation being successful are between 30-40%

[sameerudeen in reply to ZOO1]

childliverdisease.org/liver...

Please read the leaflet.

It covered most of the information.

[ZOO1 in reply to sameerudeen]

Hello ,managed to go through the leaflet and it is very informative,the baby is 6 months now,what can be best for her

[ZOO1 in reply to ZOO1]

Are you saying kasai can be done?

[sameerudeen in reply to ZOO1]

My daughter had been diagnosed as Biliary atresia and she had a surgery in UK at 58th day

[ZOO1 in reply to sameerudeen]

how old is your daughter?

[sameerudeen in reply to ZOO1]

She is now 14 week old

[Angie46 in reply to ZOO1]

Just curious as to caused the drs to delay intervention or treatment from 2-6 months? Biliary Atresia is typically found very early as it sounds your baby was diagnosed at 8 weeks but I don’t understand why they have waited 4 months to do a biopsy or discuss other options. Are they forgoing the Kasai procedure and placing your baby on the transplant list?

[Lois-Cldf Partner]

you can download some info here from our website:

childliverdisease.org/wp-co...