Biliary atresia

[BA0619]

Took my daughter into A&E friday morning due to a high temp turns out she had liver failure, cholangitis, ascites and sepsis! She was absolutely fine the day before and even had a check up on Wednesday at her big hospital to do with liver.

We only came out of hospital 16 days before this after an 8 day stay due to suspected cholangitis and ascites!

It's crazy how quickly things can change! Wondering what will happen next 🙄

[baby1311]

Hi, BA journey it is so unpredictable my son it is 10 months old and fighting with BA last week we went at Local hospital to have a vitamine D injection and we end up staying for 6 days becouse he had a infection. We never know what it is next , need to take a day at the time.

God bless your little one. Big hugs

[BA0619 in reply to baby1311]

Thank you. She only turned 5 months 3 days ago and was 8 weeks 3 days old when she had her kasai.

I know how you feel, ours was a check up last time we ended up in hospital!

Hope everything going forward goes well for you

[baby1311 in reply to BA0619]

Hope she will be fine only with Kasai, my son had Kasai when he was only 16 days old but unfortunately failed , till she was 6 months we have been in and aut off hospital many times with suspected cholangitis , we had to go for a Hickman line becouse they didn’t had where to poke his veins and now we are waiting for a liver transplant. We have to be strong for our little ones coz we don’t know what life lies ahead of us. 🥰 Hope your journey will be with less time spent in hospital

[Lois-Cldf Partner]

Hi BA0619 how are things going? x

[BA0619 in reply to Lois-Cldf]

Hiya! We got back home Sunday evening after 17 days in hospital. She is back to her normal self now and we have a check up at her big hospital in London a week Friday!x

[Lois-Cldf Partner in reply to BA0619]

That's great news I'm down there on Thursday so wont see you but if you need anything I am here: are you signed up with CLDF?

[BA0619 in reply to Lois-Cldf]

Thank you! Yes, I have you on Facebook too! We will also be at the Christmas party in Birmingham

[Lois-Cldf Partner in reply to BA0619]

Brilliant! See you there! xxx