My daughter is now 10 weeks and she had yellow eyes at 5 weeks. We took hr to emergency room and they did blood tests which resulted in high bilirubin and enzymes number. Her doctor seemed like he knew what her diagnosed was right away but of course we had to do few other blood tests and finally biopsy. Despite the fact that she is thriving very well. Eating, pooping and gaining well, Two weeks ago We found out that she is diagnosed with PFIC2. We are going back to see her doc on Wednesday the 8th.
I'm just wondering if anybody has that or is going through the same type. What treatment did you consider? How's your child doing? It's very hard to take in knowing that your child will soon need transplant and may not live longer. We just pray and try to stay positive.
I pray everyone is coping up very well. It's really the most difficult situation to deal with .