Post transplanted for 15 years.

[Passion123456]

My daughter was diagnosed with Biliary Atresia a failed kasai. She had a liver transplant in (2004) and she has been well since the transplant. However, since last year 2018 my daughter blood test results have been coming back abnormal. My daughter has had a CT, MRI and a ultrasound scan. The images have highlighted biliary dilation and the hepatic artery is present but small calibre changes been seen. I wanted to share this information with rest of the community furthermore, we were wondering if there any other young adults in the same boat as our daughter.

[Lois-Cldf Partner]

Hi Passion123456 are you in the UK? CLDF have lots of information on their website: childliverdisease.org and if you live in the UK we have a young person support worker too. - Lois x

[Passion123456 in reply to Lois-Cldf]

Thank you and my daughter could do with counselling or some therapy on understanding the condition.

[Lois-Cldf Partner in reply to Passion123456]

Are you in the UK?

[Passion123456 in reply to Lois-Cldf]

We live in the UK and under the Birmingham Children’s Hospital.

[Lois-Cldf Partner in reply to Passion123456]

If you haven't already you can sign up to CLDF here: childliverdisease.org/cldf-...

Do you know we have a xmas party in December too? You can find out more here: childliverdisease.org/events/

If you have any non medical questions you can contact me on [e-mail]

[Passion123456 in reply to Lois-Cldf]

Hi I have followed the above link however, I am unable to find how to register for the Christmas party.

[Lois-Cldf Partner in reply to Passion123456]

childliverdisease.org/event...

This is the link to the booking form, then go to family day and tick the xmas party box, and complete the form x