Query for liver transplant

[Richachhabda]

My daughter had kasai at 52 days but seems like that has failed and now doctors are insisting for liver transplant. I just want to know the feasibility of liver transplant, does this provide long life to the children? And do anyone know who had survived with LT for last 30/35 yrs ?

[pujatitly]

hii richa, how did you know that kasai procedure has failed? did she vomit, or what signs you saw, please let me know, because my daughter also had her kasai surgery on 6th December

[Richachhabda in reply to pujatitly]

She is still jaundiced and bili level reach to 22, tummy bloated and bili level never came to normal after the 3 months of surgery.

[pujatitly]

internet its showing that LT has much more success rate... 90-95 percent is the success rate of LT...where do you live Richa. I am from India

[Richachhabda in reply to pujatitly]

Even i am from india

[Yorkmum]

Listen. When you get your head round the fact they will die without one and there is nothing u can reverse. That’s step 1.

Step 2.

The wait and worry it will come in time and u wonder why u never pushed for transplant sooner. You may think about living donor.

Step 3. Transplant and recovery. They do recover and live a fairly normal life expectancy.

They do thrive and do so well. It will be ok they do recover. Milove forward with positivity and stay off google and join liver mums on fb. You aren’t alone. You’ve got this your little one can be ok.

The proof is our kids. My son has never been better. There’s no place for photos. Thank god we live in a country where transplant s are an option. Quite frankly transplant gives them their life back.

Good luck. Xxxx

[pujatitly in reply to Yorkmum]

hi yorkmum, my daughter had her kasai serjury on 6th dec. after 6days of her surgery she vomited only once, and today she vomited , can you please tell me is that a sign of sergury failure ,or it is normal... please reply

[Yorkmum in reply to pujatitly]

If you are at all concerned contact your liver team.

I’m no expert but it might just be swelling from the op or medication related

More sign of a failed kaisai would be jaundice , lethargy , temperature and jaundice and raised Liver numbers contact team if u are worried get bloods done

Good luck xxx

[Richachhabda in reply to Yorkmum]

I wish i can see ur kid..!! And i am definately going to join liver mums..!! Thank u soo soo much

[heather45]

My daughter is 19 now after a transplant at 7 months old. We are never far from a hospital for appointments and she has had a liver infection this year,and many other complications. Enjoy every moment you have with your child and always ask plenty of questions of your liver team, surgeon and specialist nurse about Kasai failure, transplant options.

Follow York mum' advice .

[Carol1663]

I wish you the best at this worrying time. In answer to your question, yes transplant can be the start of a long and happy life. My daughter is almost 25 years post transplant. She has a full time job, a wonderful husband and a precious son who is 2 years old. She takes medication every day but only has one hospital check up a year. She is now 32 and living a normal life.

Good luck for the future.

[Richachhabda in reply to Carol1663]

Yes we have to move forward with this positivity only. We will fulfil our duty as a parents for what best we can do for them, rest God is there to takecare of them.

[pujatitly in reply to Richachhabda]

in which hospital...and who is the donor?

[Richachhabda in reply to pujatitly]

Global hospital chennai under the guidance of DR Rela, donor is my husband

[pujatitly in reply to Richachhabda]

ok, great, and what is the cost? is transplant done richa?how is baby now?

[Richachhabda in reply to pujatitly]

Huge hooping cost 20 lac for surgery and around 5/7 lac extra for work up and lots of other things.

[pujatitly in reply to Richachhabda]

is transplant done?

[Pk2014 in reply to Richachhabda]

Hi,

I would like to let you know that professor Mohammed Rela is great at liver transplant surgery.

He has done my son liver transplant at kings hsp, London, 2014. I was living doner, my son was 6months old now his 4 years old.

His immune system is weak due to medication so when he falls unwel like with common cold or infection it does takes time to recover.

Overall his doing well, have to attend regular monthly blood test and routine checkup & consultantion appointments.

[Rdorf in reply to Carol1663]

Beautiful