Situation after operative Cholangiogram - Children's Liver ...

Children's Liver Disease Foundation

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Situation after operative Cholangiogram

MadiHassan profile image
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This is Madiha,

I am a mother of a 3month old son now , since birth , he had jondas (his stool colors were Clay yellow type), when it took long , we went to Doctor ,and he further said that he's not gaining weight , after blood tests , he investigated that his bilirubin level was 2o, direct 14, indirect 06, so he adviced us to get his HIDA scan, HIDA scan report suspected biliary Artesia.

After that report surgeon advised us to get his operative cholangiogram and liver biopsy which was done 15 days back.According to surgeon, after the xrays of Opp Cholangi, the Dia passed all its routes so he did Liver Biopsy and closed the procedure.

We recently received the liver biopsy report which is "Extra Heptic biliary Artesia".(stool color got improved , appeared as greenish yellow)

At the moment situation is really bad , as my baby is gone through three abdomen bursts and re stitched again.

After the last burst ,two days back baby is not getting back to his conscious, he's in P.I.C.U ,his kidney reports are not well, Doctors said he is having a weak healing power and weak muscles.

I request you to advise me ANY POSSIBLE WAY OR ANY POSSIBLE ADVICE to save a life and how to avoid bursting of abdomin again and again

Hope to hear back from you

Regards

A Mother

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