My son is 5 months now and diagnosed with allagille in his case liver has been affected but so far thank god he is doing ok hopefully it will stay like this
We talk about allagille with the specialist and he said as there is no cure for this we just keep an eye on him and see how he goes especially growing&itching wise because these are the main problems they also can’t say certain things for the future it’s like wait and see sort of but the worst scenario is transplant in the mean time he will take his medications and nutrition
Children with allagille are not great eaters I guess we need to find a way to increase the nutrition any advice will be taken gratefully so there is not much to do right now time will guide us eventually
He is a happy baby this is only what I care and as long as he is with us I don’t care about anything else
Believing in god is the only thing we have we trust him unconditionally