Nustendi: Hi I had 2,stents fitted 1... - Cholesterol Support

Cholesterol Support

9,648 members2,636 posts

Nustendi

Coffelovers profile image
3 Replies

Hi

I had 2,stents fitted 18 months ago and found I had familial cholesterol. After not being able to tolerate statins I have been prescribed Nustendi.

So far so good but get a lot of catarrh in my throat does anyone else get this?

I’m waiting for bloods soon so hopefully it’s working!

I suffer with anxiety and after my heart surgery it’s got a lot worse!

I constantly worry about my health now I live a healthy lifestyle and go to the gym

Written by
Coffelovers profile image
Coffelovers
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Haz58 profile image
Haz58

A cough can be a side affect so contact your doctor.

Cruising2020 profile image
Cruising2020

Morning to you.I too have inherited high cholesterol & have tried possibly every drug available for lowering cholesterol since my thirties (I'm now 73) Like you - I cannot tolerate statins, as they were causing muscle damage. Roll the click forward (I won't bore you with history) & having tests for carrying the gene, an Endocrinologist finally agreed to put me on Nustendi, after being earlier refused it, as I was 'too old' & it's very expensive !

I've not experienced any obvious side effects - I've been on it now for about 3 years & my cholesterol sits just under 6, which is extremely good for me.

I am constantly clearing my throat, as I have dry mouth, but it's not a side effect.

I hope this information helps you.

I wish you well & hope you take time out for yourself to relax & read a nice book to transport you to another world for an hour or so.

X

KatyB profile image
KatyB

Hello

I too suffered side effects from statins, firstly I came out in a rash and then I lost the use of my arms so was told not to take them but because my cholesterol was 8, my cousin persuaded me to start by taking one 5mg tablet a week and very gradually build them up from there. This I did and I now take a 10mg tablet every day. My cholesterol is down to 4.4. I have a 50% blockage in my leg and also a very small abdominal aneurysm of the aorta so it is important that I keep cholesterol at the lower end of the scale. Hope this helps.

Not what you're looking for?

You may also like...

New cholesterol drug

My partner and I have just come of Statins as we were having dreadful side effects from them, the...

New to this group

Hi, pretty bad news about my cholesterol after my annual blood test on Tuesday which I have...

The Effect of Exercise on Cholesterol Levels

So after all the reregistrations and referrals (see my past blog posts), I finally reached the...

Being treated for FH but no marker gene found when tested and have stopped statins

Hi, Have just joined heart UK. I live in Wales and after finding out a family member has possible...

High cholesterol...yet again!

My cholesterol has stuck stubbornly around 5...despite me trying everything to get it lower!...