Have just joined heart UK. I live in Wales and after finding out a family member has possible FH had my cholesterol tested - it was 8.6 with bad ratio of HDL/LDL but normal trigs. So because Wales has a free gene test was tested around a year ago but they could not find the normal marker genes. However the lipid clinic are still treating me as if I have FH because several members of my family have very high cholesterol.
I took myself off Lipitor 40mg last July after developing muscle and joint pains. Plucked up the courage to tell doc a few months ago who was not happy and so I went back on them again only to start getting the fatigue and pains again 2 weeks later. So the long and the short of it is have decided I dont want to take the bloody things - I feel as if I am poisoning myself.
Going back to the lipid clinic in a few weeks to get chol tested again and not looking forward to telling the consultant! I know I am taking a big risk with my health but apart from a cousin who had a heart attack at 51 (and who smokes, has bad diet, diabetes and overweight) no one else in my family has had signs of heart trouble until late 60's/early 70's. It does make me wonder if cholesterol is the whole story.
I am of a normal weight and take exercise every week/eat fairly healthily (am trying to follow Portfolio diet to some degree). Dont have diabetes or high blood pressure. The main thing that worries me is that I have had a lot of stress in my life and that is supposed to be a big factor in heart disease.
Not sure what to do really - has anyone else here been diagnosed with FH but heart disease not really prevalent in their family?