I went to the lipid clinic today, and, as I expected was told that the foundation trust don't pay for FH testing as it is too expensive. The consultant said that they were about to ask the commissioners if they could have testing, and I pointed out that QS41 said that testing should be offered.
It wasn't a complete waste of time as she did a more comprehensive physical exam than the previous consultant (carotid arteries, leg arteries etc) and said everything seemed fine, my BP was 140, but I said that simply showed how stressed I was as it's always under 130 in the doctors.
I said I wasn't about to take statins on the basis of 'possible' FH and she did my QRISK score at my request (which is 6.7% chance of a heart attack in the next 10 years!). But I said there was absolutely no point in my going back for review if I wasn't going to offered any more diagnostics and the position re genetic testing stinks. She didn't disagree....
So it looks like my next step is a formal complaint re breach of the QS41 standards.