Finally got my ct scans

[Vinnieplagio]

So i finally have my ct scans and know whats going on. Like i already feared i have severe deformational plagiocephaly with a facial deviation of 7°. 😔 Bummer

[rapture4u]

It's hard when you know, hope your're okay.

Best regards

Rapt

[Vinnieplagio in reply to rapture4u]

Im okay i think. I'm looking into going to a psychiatrist for it.

[DolaChangingFacesUK in reply to Vinnieplagio]

Do whatever you need to take care of yourself. Kind thoughts to you. Dola

[UmarPlagio]

Sorry to hear that.

Did they offer any improvements you could make, such as implants etc?

[Vinnieplagio in reply to UmarPlagio]

The back of my head is not that bad its more in the facial area and my nose is not centered with my skull. I tried asking if there was anything that could be done but the doctor kinda ignored my question. So im pretty sure there isnt something that can be done. Another doctor told me it was the first time she saw so much facial asymmetry with positional plagio but then ghosted me. And i was mailing with dr james goodrich who wanted to help but he died of coronavirus

[UmarPlagio in reply to Vinnieplagio]

Have you tried Dr David Dunaway, he’s based in London UK

[Vinnieplagio in reply to UmarPlagio]

Doctor dunaway only does back of the head augmentation with implants for plagiocephaly of the back and no open skull cranioplastys. My plagio is in the frontal region with twisted eyes nose cheecks ears and a deformed skull base (bottom of skull where the necks rests) etc so that type of surgery isnt suitable for my case

[UmarPlagio in reply to Vinnieplagio]

I have the same, i was hoping Dr Dunaway would be able to help but looks like that’s not an option now.

Saddest part is both my kids have it and they’re too old for helmets now so they’re doomed for a life of worry/anxiety like me.

Just have to hope technology and understanding of Plagiocephaly advance and that something can be done soon.

Could you not deal with each part separately, so rhinoplasty, maybe implants/filler for the cheeks and jawline?

[Vinnieplagio in reply to UmarPlagio]

No rynoplasty wouldnt work because my nose is not in the middle of the skull if you would draw a midline straight in the middle of my skull you would cross my right eye almost in the middle and not my nose because the devation is that big. Eyes frontal bone nose and ears cant be moved completly because it could make you blind and deaf also they would have to move and reconstruct the cranial base and everything behind your eyes and nose and thats basically impossible and even in the future such things will not be possible to reconstruct. Its why they came up with those helmets to prevent it. The only types of plagio that can be somewhat altered are craniosyntose type of plagios with the use of distraction osteogenesis. Positional plagiocephaly has a other type of internal malformation

[Vinnieplagio in reply to UmarPlagio]

Also fillers etc dont really work. The thing that makes plagios look asymmetric is because of frontal skull twist and not necessarily a cheek thats bigger it just makes it look that way when viewed upfront its like an ilusion so results most of times arent that great with frontal implant neather

[UmarPlagio in reply to Vinnieplagio]

Ah ok so we have to just grin and bear it then ?

[Vinnieplagio in reply to UmarPlagio]

It all depends on how severe the situation is. For me its defnitly better to just try to accept it but i have severe rotation but maybe your face isnt really supper rotated had you had cts taken?

[UmarPlagio in reply to Vinnieplagio]

No I’m due to have a consultation with Dr Dunaway soon, I’ll keep you posted.

I know 100% I have it, ears misaligned, eyes misaligned, crooked jawline uneven cheekbones, it’s all there.

So when surgeons market things like facial reshaping surgery, are these typically targeted at people with no deformities?

[Vinnieplagio in reply to UmarPlagio]

Yes facial reshaping like double jaw surgery etc will not give us a big advantage because its a rotational deformity thats why its good to know how much rotation there is before concidering any surgery

[JP12345 in reply to UmarPlagio]

Bro, how could that even be possible? You didn’t helmet your kids or what happened to them?

Hope you’re okay

[UmarPlagio in reply to JP12345]

I missed the chance bro, I can’t believe it I’m really down about it as I know the impact this has psychologicaly.

I suffer from it myself but only realised recently, I always knew something was not right but unfortunately got there 2 late.

The hard part for me to accept is that I was sure something was not right with them, I went to gp everything but Dr’s here are crap they just said it’s normal and it will correct itself over time. Had I have been more clued up I would’ve gone private and paid for the helmet but it wasn’t to be unfortunately.

[Ankari420blazeit in reply to UmarPlagio]

The doctors here in Australia thinks it’s normal too.......... 😔

[UmarPlagio in reply to Ankari420blazeit]

It’s ridiculous!!

Knowing that I could’ve prevented it kills me inside, completely heartbroken! All that matters to me is their happiness.

Sad thing is in hindsight it should’ve been so easy for me to realise that misaligned ears most likely = Plagiocephaly, but I was too stupid to realise it in time.

To make things worse my babies are little beauties, without Plagiocephaly they’d literally be perfect.

[Vinnieplagio in reply to UmarPlagio]

How old are your kids right now?

[UmarPlagio in reply to Vinnieplagio]

6 and 4 years

[JP12345 in reply to UmarPlagio]

That’s the saddest thing in the whole plagio family bruh How hard is your plagio?

[UmarPlagio in reply to JP12345]

I know bro 🙁

Mine is severe also. How about yours? Have you had a scan yet?

[JP12345 in reply to UmarPlagio]

Hmmm it’s okay, but I can see one good and one bad side and all the thing I notice are common with plagio. Just not nice that it can be so much better.