Hi everyone, my 2 month old was just diagnosed with BWS yesterday. The presence of hemihypertrophy on his right side (arm & leg) and visible stork bites on his forehead and back of his neck led to the genetic testing and diagnosis. My question is regarding his tongue, specifically, the lack of visible macroglossia to this point. He feeds just fine and when resting, his tongue is not visibly protruding from his mouth. I've browsed many of the questions and comments on the forum and read about very scary episodes of respiratory problems caused by enlarged tongue. I realize each case of BWS is different, but are there any red flags or warnings I should be looking for in regard to his tongue? Is this symptom typically present from birth or can it unexpectedly/rapidly grow with age? Thank you for your time and for making this forum available to concerned parents, it's extremely helpful.
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