I am currently 35 weeks pregnant with my son, who was diagnosed with BWS at 18 weeks. He initially had an omphalele/examphalos, but this cured itself. Since then the scans have shown his abdomen to be way ahead of the rest of his growth. The last scan showed his length and weight way above the 90th percentile. The last weight measurement put him above 7lb at 33 weeks pregnancy.
I am really hoping that some of you may have been in a similar situation and can help share your experiences. He's been diagnosed with UPD BWS from an amniocentesis. I am just about to see a more specialist hospital as I wasn't happy with the normal NHS hospital's treatment and lack of knowledge (eg I kept having to tell them why they were doing scans etc!)