Our son might have BWS. Will testing give us a definite answer or is there a chance we still dont know. Our son was at birth 9.9lb and 23 inches. He sometimes have his tongue out a little. we went for scan and his got large kidneys but still in range. Our peadiatrician thinks our son might have BWS. He said testingwill not help as there is only 1% chance we will find an answer this is what his been told by a geneticist. Can anybody recommend where to go or what we should do? Most of the info on internet seems to be dated many years back?