my son is 8 weeks today. he was diagnosed as BWS at birth. his tongue is large, but still he can breath normal and feeds through normal pharmacy bottle. we are living in Sudan. thanks god still there are good quality of medical doctors who can discovered these type of abnormalities. Is it a must he should undergo surgery or he might recover gradually. so far there is no much progress. if surgery is a must any hospital that we can trust in EGYPT, Jordan or we should travel to UK or USA, taking into account the difficulties of getting visa for both countries.