Hi, I am having a struggle with my son. My son is 5 years old and has BWS. He was diagnosed at birth. He has had leg flare ups and take him to all necessary appointments (blood work, u/s and physical) every 3 months. He is such an smart and sensitive boy. He is full of love and has good manners. He is in Kindergarten and he has been in school for 3 weeks now, his behavior is not following directions, talking out of turn, scribbling through work. I have talked to my son and taking his belongings away so he understands this is not how to act in school. He was not like this at PRE-K or at home. I don't know where this is coming from. From readings I have found that behaviors and emotional needs affect some kids with BWS, but have not really found anything that has got my attention. Should I be concerned, what should I do? Has anyone gone through this. I need help or advice. I have no one to really talk to. The doctors here that follow his care really don't know a whole lot all I hear is there has only been 50 kids diagnosed that they know of in the state of Arizona.
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