I was born on April 11, 1992 at Home Hospital in Lafayette, Indiana and i weighted 14lbs and 14ozs and i was 3 weeks early and had a 50/50 chance of living and my mom had to have a double c-section because i was born sideways and i spent my first month of my life in Riley Hospital for Children in Indianapolis, Indiana and when i was 1 year old i had to have a surgery to remove 1/3 of my tongue just so i could talk. My life ive had 3 surgeries on my left knee, surgery on my stomach and tongue. My whole left side of my body inside and out is larger than my right side: from my brain to where my legs split . Ive got to graduate High School and I have a opportunity to play on Purdue Girls Basketball team if i get the application in on time.
My Life: I was born on April 11, 1992 at Home... - BWS Support
My Life

Written by

KimHarris
To view profiles and participate in discussions please or .
Read more about...
2 Replies
•
Happy belated birthday and good luck on making it to the basketball team! Thanks for sharing your story!😀
Thank you for sharing your story , tell us more about your problems related with BWS and how you achieved this successful life ??
Not what you're looking for?
You may also like...
How long did it take to diagnose your little one??
My daughter is now 11wks and she was born with a large tongue on the right side only. The very...
Will tongues of babies with BWS get bigger as they grow?
Hi I'm Josh, my daughter has BWS. She was born with omphalocele, has large tongue, ear crease, and...
My daughter and BWS & Paediatricians in North England
I stumbled across BWS a week ago whilst googling Earlobe Creases. My 11 week old has creases in...
Is Tongue Reduction Surgery a must or child might recover by Age?
Hi
my son is 8 weeks today. he was diagnosed as BWS at birth. his tongue is large, but still he...
Tongue reduction for adults
Have just had an enquiry from someone who has suffered from macroglossia for around 50 years. Is...