I’m 42 years old and currently navigating a challenging journey with liver disease. I was diagnosed with hepatocellular carcinoma (HCC) last year due to chronic hepatitis B and underwent surgery. Recently, I experienced a recurrence, and my medical team has now planned a re-resection as a bridging procedure before moving forward with a liver transplant.
During my research, I came across a story that really resonated with me. As I prepare for both the transplant process and the recovery afterward, I would love the opportunity to connect for guidance and support, if possible.
Thank you all for being such a supportive community. Looking forward to hearing from you!
Best,
Daniel
Written by
Danieldani
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Hi Daniel, welcome to the forum, there are loads of pre and post t/p folks here (my hubby had one in June 2024 and is doing brilliantly). Also, if you do Facebook there is a very active group 'Liver Transplant Support UK' with almost 2000 members and you'll certainly get a warm welcome there and be able to trade stories.
BLT runs various online and some in person support groups - details of which can be found at :- britishlivertrust.org.uk/in...
If you know which transplant centre you'll be going to then they too may have their own pre and post t/p support group. (Hubby and I have been going to Edinburgh's one since his op.).
The combined members of the community here represent a broad range of patients and carers (with lived experience drawn from across the varied points along their respective liver health journeys).
Thank you for sharing an introduction to your own challenging journey. That is a lot for you to have been navigating over the last year.
My best wishes to you, with the support of your medical team; as you all prepare for the coming phases of implementing your treatment plan.
I am confident that fellow members more experienced than I in your planned bridging re-section and transplant will likely join the conversation before long.
(My journey in learning about my own liver health only started late last year. However, I have already found many people here have been very welcoming and most generous in sharing: their experience, knowledge and signposting).
Although I am in the UK, I am naturally prone to being a bit of a Night Owl, so you may observe me swapping in and out of this forum at varied times of both night and day.
You may already have discovered the British Liver Trust website, although I thought I would highlight to you - the schedule of upcoming virtual / webinar topic-specific support groups - just in case you have yet to experience the support and benefit from being able to put faces to to the experiences / stories of fellow liver health community members (I have found it can be beneficial to engage with people via a relevant virtual support group, in addition to this written platform, as the "live human" element of a virtual group can help participants to feel less "solo" along their journey):
Hi, I'm 8 years post transplant, happy to answer anything.If you use Facebook please feel free to join our friendly and knowledgeable Facebook page called 'liver transplant support uk ' thousands of people that have been in your situation and have experienced everything.
Hi Danieldani I had my t/p two years ago I’m 70 in a week and living a great life the wife and I look after our grandchildren three times a week , I don’t know what you want out of life but look after two grandchildren and you find out how fit you are 😂🤣.
Good luck to you on your journey and I know it’s a big operation but they know what they are doing 👍
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